Our giving: Organizations
Janssen is fully committed to providing high quality products and services to healthcare professionals, patients and their families. Simply put, we always place the needs and well-being of the people we serve first. It is important for us to understand all aspects of patients’ needs. That’s why we engage and collaborate with patient organisations, who play an important role in informing, supporting, and assisting patients. As a company, we learn from this interaction, and that helps us in the development of new treatments and in providing useful information.
It is our goal to ensure that these relationships and partnerships proceed within a principled framework of mutual respect and learning, integrity, independence, and transparency.
This framework has been described in the “Code Of Practice On Relationships Between The Pharmaceutical Industry And Patient Organisations", as developed by the European Federation Of Pharmaceutical Industry Associations (EFPIA) in collaboration with pan-European patient organisations.
- The independence of patient organizations, in terms of their political judgment, policies and activities, will be assured.
- All partnerships between patient organisations and the pharmaceutical industry will be based on mutual respect, with the views and decisions of each partner having equal value.
- The pharmaceutical industry will not request, nor will patient organisations undertake, the promotion of a particular medicine.
- The objectives and scope of any partnership will be transparent. Financial and non- financial support provided by the pharmaceutical industry will always be clearly acknowledged.
- The pharmaceutical industry welcomes broad funding of patient organizations from multiple sources.
In order to facilitate collaboration, Janssen has developed the following:
- A review process by a multi-disciplinary committee to evaluate requests for funding or collaboration.
- Disclosure of the funding provided to patient organisations. The purpose of our disclosure of contributions is to demonstrate our ongoing commitment to transparency.
What is the nature of our collaboration with patient organisations?
Janssen may interact with patient groups in the following ways:
- Support of educational programmes and conferences;
- Sponsorship of fund-raising events;
- Contributions to support programmes and services for the patient community and their care-givers;
- Contributions to support activities to help patients and care-givers advocate better treatment, services and support; and also collaborations to raise awareness about the diseases.
The following types of requests are generally not eligible for contributions:
- Scholarships to individuals;
- Direct contributions to individuals;
- Loans.
Contributions Process Statement
A multi-disciplinary committee reviews all requests. Requests should include the organization's mission statement, tax status, project/event description, description of how the funds will be used, project budget (if applicable) and annual operating budget.
| Name of the Patient Organisation | Website | Amount | Date of Contract |
| Lietuvos diabeto asociacija | www.dia.lt | 750 | 8 Feb 2016 |
Description: Supporting publishing costs of The Lithuanian Diabetes Association newsletter "Diabetas".
| Name of the Patient Organisation | Website | Amount | Date of Contract |
| Onkohematologinių ligonių bendrija (OHLB) „Kraujas“ | www.kraujas.lt | 3000 | 2 Mar 2016 |
Description: Supporting organization of the annual event of the oncohematological patients associations, with the seminars for the patients and general practitioners on the management of various blood diseases.
| Name of the Patient Organisation | Website | Amount | Date of Contract |
| Lietuvos sutrikusios psichikos žmonių globos bendrija | www.lspzgb.lt | 1500 | 9 Mar 2016 |
Description: Partial financial support for organization continuous implementation of National program on social integration of disabled mentally ill people.
| Name of the Patient Organisation | Website | Amount | Date of Contract |
| Vilniaus išsėtinės sklerozės draugija | 4075 | 6 Apr 2016 |
Description: Support for patient organization for implementation of project for Multiple Sclerosis people in Vilnius region.
| Name of the Patient Organisation | Website | Amount | Date of Contract |
| Lietuvos išsėtinės sklerozės sąjunga | www.liss.lt | 4408 | 19 Apr 2016 |
Description: Financial support for World Multiple Sclerosis Day related activities in Lithuania and participation of one Lithuania Multiple Sclerosis Union member at Annual European Multiple Sclerosis Platform Conference on 17-18th May 2016 in Oslo.
| Name of the Patient Organisation | Website | Amount | Date of Contract |
| Onkohematologinių ligonių bendrija (OHLB) „Kraujas“ | www.kraujas.lt | 4720 | 19 Apr 2016 |
Description: Support for the preparation and printing of the educational material for Chronic lymphocytic leukemia patients covering preparation and release expenses.
| Name of the Patient Organisation | Website | Amount | Date of Contract |
| Visuomeninė organizacija "Išmokime gyventi su vėžio liga" | 3000 | 7 Jun 2016 |
Description: Supporting organization of educational activity on the provision of the information on Prostate Cancer topics to the patients and their caregivers and families.
| Name of the Patient Organisation | Website | Amount | Date of Contract |
| Lietuvos sergančiųjų prostatos vėžiu draugija | www.prostatosvezys.lt | 1500 | 7 Jun 2016 |
Description: Support disease awareness activities of the Prostate Cancer patients association for the educational purposes.
| Name of the Patient Organisation | Website | Amount | Date of Contract |
| Onkohematologinių ligonių bendrija (OHLB) „Kraujas“ | www.kraujas.lt | 4100 | 12 Jul 2016 |
Description: Supporting organization of annual event on Lymphoma day with wide coverage of Disease awareness topics, including Chronic lymphocytic leukemia. Success stories portal and information campaign for the Patient's Motivation.
| Name of the Patient Organisation | Website | Amount | Date of Contract |
| Lietuvos išsėtinės sklerozės sąjunga | www.liss.lt | 2500 | 2 Aug 2016 |
Description: Financial support for Lithuania Multiple Sclerosis Union activities: seminar for Multiple Sclerosis nurses and patients in September 2016; International Conference "Multiple Sclerosis patient topicality in Lithuania and Europe".
| Name of the Patient Organisation | Website | Amount | Date of Contract |
| Lietuvos sergančiųjų prostatos vėžiu draugija | www.prostatosvezys.lt | 2000 | 9 Sep 2016 |
Description: Support for Prostate cancer Patient Organization activities: prostate cancer day activities (conference, materials for patients).
| Name of the Patient Organisation | Website | Amount | Date of Contract |
| Lietuvos išsėtinės sklerozės sąjunga | www.liss.lt | 2500 | 4 Oct 2016 |
Description: Financial support for Lithuania Multiple Sclerosis Union activities: seminar for Multiple Sclerosis nurses and patients in October 2016.
| Name of the Patient Organisation | Website | Amount | Date of Contract |
| Vilniaus išsėtinės sklerozės draugija | 4855 | 4 Oct 2016 |
Description: Support for patient organization for implementation of project for Multiple Sclerosis people in Vilnius region.
| Name of the Patient Organisation | Website | Amount | Date of Contract |
| Onkohematologinių ligonių bendrija (OHLB) „Kraujas“ | www.kraujas.lt | 4280 | 17 Oct 2016 |
Description: Support for the preparation and printing of the educational material for Multiple Myeloma patients covering preparation and release expenses.
| Name of the Patient Organisation | Website | Amount | Date of Contract |
| Pagalbos onkologiniams ligoniams asociacija | www.pola.lt | 7000 | 17 Oct 2016 |
Description: To support health publishing project: book for the oncology patients society.
| Name of the Patient Organisation | Website | Amount | Date of Contract |
| Onkohematologinių ligonių bendrija (OHLB) „Kraujas“ | www.kraujas.lt | 1100 | 26 Oct 2016 |
Description: Supporting participation of the Patient Organization representative in the Chronic lymphocytic leukemia Horizons conference. The main goal of this first Chronic lymphocytic leukemia Horizons conference is to build capacity in patient advocates to support people affected by Chronic lymphocytic leukemia. Networking and best practice sharing are at the core of all conference activities. The conference aims to empower advocates by developing their skills and knowledge of Chronic lymphocytic leukemia specific topics. The agenda, with tutorials to assist advocacy development and knowledge of Chronic lymphocytic leukemia specific challenges, treatment, care supportive resources and unmet needs will aid the building and growing of effective patient organizational support for people affected by Chronic lymphocytic leukemia.
| Name of the Patient Organisation | Website | Amount | Date of Contract |
| Onkohematologinių ligonių bendrija (OHLB) „Kraujas“ | www.kraujas.lt | 2025 | 26 Oct 2016 |
Description: To support Patient Organization "Kraujas" member participation in Lymphoma Coalition Summit meeting and American Society of Hematology annual meeting -patients session.
| Name of the Patient Organisation | Website | Amount | Date of Contract |
| Onkohematologinių ligonių bendrija (OHLB) „Kraujas“ | www.kraujas.lt | 4500 | 5 Dec 2016 |
Description: Support for Patient Organization "Kraujas": to update community webpage www.kraujas.lt.
| Name of the Patient Organisation | Website | Amount | Date of Contract |
| Onkopsichologijos ir komunikacijos centras, VšĮ | 2000 | 9 Dec 2016 |
Description: To support seminars for oncohematology nurses " How to communicate with the oncology patients".
| Name of the Patient Organisation | Website | Amount | Date of Contract |
| Visuomeninė organizacija "Išmokime gyventi su vėžio liga" | 1900 | 9 Dec 2016 |
Description: Support for the cancer patient association: Prostate Cancer Informational booklet production and distribution. The booklet will help Prostate Cancer patients to get more accurate information about disease.
| Name of the Patient Organisation | Website | Amount | Date of Contract |
| Oncohematology Patients Association "Kraujas" | www.kraujas.lt | 3000 | 16 Mar 2015 |
Description: Supporting organization of the Annual event for the oncohematological patients, general practitioners and society - "Hema Days 2015"
| Name of the Patient Organisation | Website | Amount | Date of Contract |
| Oncohematology Patients Association "Kraujas" | www.kraujas.lt | 7000 | 16 Mar 2015 |
Description: Supporting organization and implementation of educational disease awareness program for the patients, society and caregivers on the Chronic Lymphocytic Leukemia (CL) topic in Lithuania.
| Name of the Patient Organisation | Website | Amount | Date of Contract |
| Lithuanian Diabetes Association | www.dia.lt | 725 | 16 Mar 2015 |
Description: Supporting publishing costs of newspaper "Diabetas" of the Association
| Name of the Patient Organisation | Website | Amount | Date of Contract |
| Association of People with Mental Disorders | www.Lspzgb.lt | 16 Mar 2015 |
Description: Supporting annual activities of the Association, involving different projects decresing the disjuncture of the menatally ill people and their relatives, ensuring social integration through the continual educational activities for people with mental health.
| Name of the Patient Organisation | Website | Amount | Date of Contract |
| LIETUVOS IŠSĖTINĖS SKLEROZĖS SĄJUNGA | www.liss.lt | 5000 | 1 Apr 2015 |
Description: Supporting organization of the Multiple Sclerosis Day event as well as educational seminars "New Challenges" for newly diagnosed patients.
| Name of the Patient Organisation | Website | Amount | Date of Contract |
| Public Institution "Išmokime gyventi su vėžio liga" | 1642 | 20 Apr 2015 |
Description: Supporting implementation of the educational - information project for the patients, their family members and caregivers on different prostate cancer related questions - free help line.
| Name of the Patient Organisation | Website | Amount | Date of Contract |
| Oncohematology Patients Association "Kraujas" | www.kraujas.lt | 4000 | 14 Jul 2015 |
Description: Supporting preparation and edition of the information book-folder for the CLL patients, including all essential information on the diseases related topics.
| Name of the Patient Organisation | Website | Amount | Date of Contract |
| Oncohematology Patients Association "Kraujas" | www.kraujas.lt | 1500 | 14 Jul 2015 |
Description: Supporting organization of World hematological diseases awareness months', September activities, including conference for the patients, society and officials.
| Name of the Patient Organisation | Website | Amount | Date of Contract |
| LIETUVOS IŠSĖTINĖS SKLEROZĖS SĄJUNGA | www.liss.lt | 5000 | 2 Sep 2015 |
Description: Supporting organization of Annual summer meeting as well as educational seminars "New Challenges" for newly diagnosed patients during 2nd half of the year.
| Name of the Patient Organisation | Website | Amount | Date of Contract |
| POLA (Oncology Patients Aid Association) | www.pola.lt | 1900 | 7 Sep 2015 |
Description: Additional support for the release of educational booklet for the patients, caregivers and society on the metastatic castration resistant prostate cancer.
| Name of the Patient Organisation | Website | Amount | Date of Contract |
| Ypatingi žmonės, VšĮ | 4997 | 18 Sep 2015 |
Description: Supporting organization of the project "School of Life" dedicated to Multiple Sclerosis patients, involving cycle of lectures-meetings for the patients.
| Name of the Patient Organisation | Website | Amount | Date of Contract |
| Oncohematology Patients Association "Kraujas" | www.kraujas.lt | 5000 | 8 Oct 2015 |
Description: Supporting organization of the educational event on the blood cancer diseases awareness and the activities, related to the registration to bone marrow donors register in Lithuania, dedicated to the 10th anniversary of the "be good" project in Lithuania.
| Name of the Patient Organisation | Website | Amount | Date of Contract |
| LIETUVOS IŠSĖTINĖS SKLEROZĖS SĄJUNGA | www.liss.lt | 1045 | 10 Nov 2015 |
Description: Supporting participation of the Patient Organization representative at International MS dedicated events: Latvian MS Association annual meeting, "Eurocarers" conference and "Empowering-H" project.
| Name of the Patient Organisation | Website | Amount | Date of Contract |
| Prostate Cancer Patients Association of Lithuania | www.prostatosvezys.lt | 3000 | 17 Nov 2015 |
Description: Supporting implementation of the Movember world project for the prostate cancer awareness within the society.
| Name of the Patient Organisation | Website | Amount | Date of Contract |
| Asociacija Onkologija.lt | www.onkologija.lt | 2500 | 17 Nov 2015 |
Description: Supporting organization of the advanced ovarian cancer information campaign through the media and local meetings/seminars with patients, families and society.
| Name of the Patient Organisation | Website | Amount | Date of Contract |
| LIETUVOS IŠSĖTINĖS SKLEROZĖS SĄJUNGA | www.liss.lt | 2136 | 26 Nov 2015 |
Description: Supporting implementation of the project Horizon 2020_Emp-H.
| Name of the Patient Organisation | Website | Amount | Date of Contract |
| POLA (Oncology Patients Aid Association) | www.pola.lt | 2500 | 26 Nov 2015 |
Description: Supporting implementation of the ongoing project on the release of cards for the oncological patients to stay with the society, getting access to the social events and other activities free of charge or with the discounts.
| Name of the Patient Organisation | Website | Amount | Date of Contract |
| Oncohematology Patients Association "Kraujas" | www.kraujas.lt | 600 | 26 Nov 2015 |
Description: Supporting organization of the seminar for the caregivers on "How to socialize with oncological patients"
| Name of the Patient Organisation | Website | Amount | Date of Contract |
| POLA (Oncology Patients Aid Association) | www.pola.lt | 1592.91 | 13 Feb 2014 |
Description: Supporting organization and implementation of the project "POLA FORUM" including seminars and round-table discussions, covering part of organizational expenses.
| Name of the Patient Organisation | Website | Amount | Date of Contract |
| Prostate Cancer Patients Association of Lithuania | www.prostatosvezys.lt | 1404.65 | 29 Apr 2014 |
Description: Supporting organization and implementation of the project dedicated to the Father's day and prostate cancer issues, covering organizational expenses.
| Name of the Patient Organisation | Website | Amount | Date of Contract |
| Prostate Cancer Patients Association of Lithuania | www.prostatosvezys.lt | 1592.91 | 29 Apr 2014 |
Description: Supporting organization of the exhibition dedicated to the Father's day and prostate cancer issues, covering organizational expenses.
| Name of the Patient Organisation | Website | Amount | Date of Contract |
| POLA (Oncology Patients Aid Association) | www.pola.lt | 1534.98 | 29 Apr 2014 |
Description: Supporting organization and implementation of the project "POLA developments in educating cancer patients and their families competences, advocacy skills" in Vilnius, Kaunas, Klaipeda, Siauliai, covering organizational expenses.
| Name of the Patient Organisation | Website | Amount | Date of Contract |
| Oncohematology Patients Association "Kraujas" | www.kraujas.lt | 4344.3 | 6 May 2014 |
Description: Supporting organization and implementation of the seminars and book release project for the oncohematology patients: seminar in Klaipeda and Vilnius.
| Name of the Patient Organisation | Website | Amount | Date of Contract |
| Prostate Cancer Patients Association of Lithuania | www.prostatosvezys.lt | 3909.87 | 19 May 2014 |
Description: Additional support for organization and implementation of the projects dedicated to the Father's day, covering organizational and preparation expenses: patient story, press conference, television and radio broadcasts.
| Name of the Patient Organisation | Website | Amount | Date of Contract |
| Association of People with Mental Disorders | www.Lspzgb.lt | 868.86 | 20 May 2014 |
Description: Supporting organization and implementation of events and seminars organized by Association of People with Mental Disorders for the year 2014: internal training and publishing of the periodical journal "Globa".
| Name of the Patient Organisation | Website | Amount | Date of Contract |
| Lithuanian Diabetes Association | www.dia.lt | 724 | 21 May 2014 |
Description: Supporting publishing of newspaper "Diabet" for year 2014.
| Name of the Patient Organisation | Website | Amount | Date of Contract |
| Public Institution "Išmokime gyventi kartu su vėžio liga" | 2440.04 | 16 Sep 2014 |
Description: Implementation of the informational and educational project dedicated to prostate cancer patients and their relatives - free help line.
| Name of the Patient Organisation | Website | Amount | Date of Contract |
| Prostate Cancer Patients Association of Lithuania | www.prostatosvezys.lt | 1448.1 | 18 Sep 2014 |
Description: Supporting organization and implementation of the event dedicated to the European Urology Week on the topic "Oncourology 2014", covering organizational expenses.
| Name of the Patient Organisation | Website | Amount | Date of Contract |
| Oncohematology Patients Association "Kraujas" | www.kraujas.lt | 3475.44 | 25 Nov 2014 |
Description: Supporting organization and implementation of the seminars for oncohematological patients and their relatives in Vilnius and Kaunas.
| Name of the Patient Organisation | Website | Amount | Date of Contract |
| Prostate Cancer Patients Association of Lithuania | www.prostatosvezys.lt | 2896.2 | 25 Nov 2014 |
Description: Supporting organization and implementation of the project dedicated to "Movember" events (publicity of prostate cancer issue), covering oranizational expenses.
| Name of the Patient Organisation | Website | Amount | Date of Contract |
| Oncohematology Patients Association "Kraujas" | www.kraujas.lt | 2896.2 | 28 Nov 2014 |
Description: Supporting organization and implementation of two projects: Informational release for the patients "Chronic lymphocytic leukemia" and informational release for the patients "Multiple myeloma" 3rd edition publication expenses with the year 2015.
| Name of the Patient Organisation | Website | Amount | Date of Contract |
| POLA (Oncology Patients Aid Association) | www.pola.lt | 2896.2 | 3 Dec 2014 |
Description: Supporting organization and implementation of the project "POLA CARD", organized by Oncology Patients Aid Association (POLA), covering organizational expenses for the year 2015.
| Name of the Patient Organisation | Website | Amount | Date of Contract |
| POLA (Oncology Patients Aid Association) | www.pola.lt | 1448.1 | 3 Dec 2014 |
Description: Supporting organization and implementation of the project "Publication on the Prostate cancer topic", covering organizational expenses: translation, layout and release in year 2015.
| Name of the Patient Organisation | Website | Amount | Date of Contract |
| Oncohematology Patients Association "Kraujas" | www.kraujas.lt | 930 | 15 Feb 2013 |
Description: Supporting participation of 2 psychologists in SIMONTON program trainings, covering participation expenses.
| Name of the Patient Organisation | Website | Amount | Date of Contract |
| Oncohematology Patients Association "Kraujas" | www.kraujas.lt | 348 | 2 Apr 2013 |
Description: Supporting participation of one member of Association in Annual Meeting of the European Group of Blood and Marrow Transplantation - EBMT Transplant Patient and Family Day and meeting with other PO representatives covering participation expenses.
| Name of the Patient Organisation | Website | Amount | Date of Contract |
| Association of People with Mental Disorders | www.Lspzgb.lt | 724 | 5 Jul 20113 |
Description: Supporting organization and implementation of events and seminars organized by Association within the year 2013: "Trainings for people who works in societies", Conference "Protection of Human Rights and Reform of Disability Institute in Lithaunia", covering the organizational expenses; Preparation of articles for magazine "Globa".
| Name of the Patient Organisation | Website | Amount | Date of Contract |
| Prostate Cancer Patients Association of Lithuania | www.prostatosvezys.lt | 1448 | 2 Oct 2013 |
Description: Supporting organization and implementation of prostate cancer project (educational seminar tour through Lithuania) for dissemination of information to public society about Prostate Cancer and its diagnostic and treatment methods, covering organizational expences.
| Name of the Patient Organisation | Website | Amount | Date of Contract |
| Oncohematology Patients Association "Kraujas" | www.kraujas.lt | 3620 | 25 Sep 2013 |
Description: Supporting implementation of the project "Myeloma day 2013" event, organized by Association, covering organizational expenses.
| Name of the Patient Organisation | Website | Amount | Date of Contract |
| Lithuanian Infectious Diseases Patients Association | 970 | 6 Nov 2013 |
Description: Supporting implementation of the project of HCV movie with questions and answers about hepatitis for public society and news media, overing the production expenses of HCV videos.
| Name of the Patient Organisation | Website | Amount | Date of Contract |
| Oncohematology Patients Association "Kraujas" | www.kraujas.lt | 1883 | 13 Nov 2013 |
Description: Supporting organization and implementation of positive psychotherapy and ergotherapy seminars in Vilnius, Kaunas and Klaipeda, organized by Association, covering organizational expenses.
| Name of the Patient Organisation | Website | Amount | Date of Contract |
| Oncohematology Patients Association "Kraujas" | www.kraujas.lt | 2896 | 29 Nov 2013 |
Description: Supporting organization and implementation of conference "Day of Blood", organized by Association in May 2014, covering organizational expenses.
| Name of the Patient Organisation | Website | Amount | Date of Contract |
| Society of Psoriasis Patients of Lithuania | www.lzsd.webs.com | 290 | 25 Nov 2013 |
Description: Supporting organization and implementation of "Psoriasis Society of Lithuania meeting-conference", covering organizational expenses.
| Name of the Patient Organisation | Website | Amount | Date of Contract |
| POLA (Oncology Patients Aid Association) | www.pola.lt | 976 | 2 Dec 2013 |
Description: Supporting organization and implementation of the project "POLA CARD", organized by Oncology Patients Aid Association (POLA), covering organizational expenses.
| Name of the Patient Organisation | Website | Amount | Date of Contract |
| Association Onkologija.lt | http://www.onkologija.lt/ | 579 | 16 Dec 2013 |
Description: Supporting organization and implemenattion of the project "Seminars for the patients with ovarian cancer", organized by Association in Vilnius, Kaunas and Klaipeda, covering organizational expenses, preparation and printing of informational brochure about ovarian cancer within Dec 2013 - Feb 2014.