COLLABORATION WITH PATIENT ORGANIZATIONS
At Janssen, we work together all over the world to find solutions to some of the most complex medical challenges. These require the most prudent science, the most creative spirits, and the greatest possible openness for collaborating at every stage with researchers, governments, patient organizations, and many others.
In the interest of patients
A good health for every patient is and remains the mainspring for Janssen. We aim to get a clear understanding of all aspects relating to patient requirements. That is why we work together with various patient organizations which play an important role in terms of patient information and support. Belgium has about 400 large and small patient organizations, and their number and influence are growing constantly.
The relationships and partnerships are based on a number of principles, such as mutual respect, knowledge, integrity, autonomy, and transparency. These principles have been outlined since 2007 in the ‘Code Of Practice On Relationships Between The Pharmaceutical Industry And Patient Organizations’, which was put together by the European Federation of Pharmaceutical Industry Associations (EFPIA) in partnership with patient organizations from all over Europe. The Belgian umbrella organization of the pharmaceutical industry, pharma.be, also has a deontological code and ensures that it is observed strictly. This deontological code provides the framework for building long-term partnerships with all health care partners, including academics, physicians, pharmacists, health institutions, and patient organizations. Janssen endorses both codes in full.
Why collaborate with patient organizations?
Janssen believes that collaboration and interaction with patient organizations is extremely important, instructive, and valuable. They help us to develop new treatments and provide information to help patients. Each year, Janssen supports a number of patient organizations in Belgium in different ways. We do so, for example, by providing help with the completion of a magazine, website, or other publication, attending congresses, or setting up campaigns or activities.
All requests for collaboration are subjected to a revision process which Janssen has developed specifically for this purpose. This process outlines clearly which types of requests from patient organizations will and won’t be honored. A multidisciplinary committee will assess and approve funding or partnership requests. Every quarter, Janssen discloses its contributions to the various partnership projects.
Find below a list of patient organizations which we have supported in Belgium during 2014 & 2015. For information on more recent (2016 onwards) interactions with patient organizations in Belgium click here.
|Aide Info Sida asbl||Support of patient related services, diverse projects||2015|
|CHAC asbl||Support for annual list of activities (brochures, website, ...)||2015|
|CMP Vlaanderen vzw||Support for diverse projects: renew website, symposium 9 May, magazine Flash, ...||2015|
|Mymu Wallonie-Bruxelles asbl||Support for symposium in Mont-Godinne 27 May 2015||2015|
|Plate-Forme Prevention Sida asbl||Support for different projects: monthly meetings, publication Sida News||2015|
|Reumatoide Artritis-Liga vzw||Support for magazine RAAM||2015|
|ReumaNet vzw||Support for 'World Rheumatism Day' projects||2015|
|ReumaNet vzw||Donation 10 chairs||2015|
|Sensoa v.z.w.||Support of diverse set of projects: website and digital newsletter, reprint brochures, activities, ...||2015|
|Psoriasis Liga Vlaanderen||Support for magazine Psoriant and translation cost||2015|
|Similes Wallonie||Support internal training: motivational approach||2015|
|Vlaams Hepatitis Contactpunt vzw||Support for mailing info Hep C to members, update website Hepafocus, creation facebook page||2015|
|Centrum ZitStil vzw||Support for ADHD Day November 21st||2015|
|CHAC asbl||Support for annual list of activities||2014|
|GIPSO asbl||Support for PSO-magazine and different activities||2014|
|Plate-Forme Prevention Sida asbl||Support for different projects: realisation brochures et outils pour et par les personnes seropositives||2014|
|Psoriasis Liga Vlaanderen vzw||Support for World Day Psoriasis, magazine PSORIANT and 2 website support||2014|
|Reumatoide Artritis-Liga vzw||Support for magazine RAAM||2014|
|Sensoa v.z.w.||Co-support of diverse set of projects: General working, update and reprint brochures, activities, ...||2014|
|Federatie van Vlaamse Simileskringen vzw||Support for VOKA membership and distribution of magazine||2014|
|Similes Bruxelles asbl||Support for brochure 'Le nouveau fil d'Ariane'||2014|
|Aide Info Sida asbl||Support of patient related services, diverse||2014|
|CMP Vlaanderen vzw||Support for Multiple Myeloom en Waldenstromsymposium 8/11/2014 (invitations, syllabi, ...)||2014|
|Collectif des Femmes asbl||Support for reprint brochures||2014|
|Mymu Wallonie-Bruxelles asbl||Support for annual list of activities: reprint brochures, flyers, support website||2014|
|ReumaNet vzw||Support for 'World Rheumatism Day' projects||2014|
|Sensoa v.z.w.||Support for print more brochures and order ballpoints for promoting website||2014|
|Similes Wallonie asbl||Support for Profamille congres (hiring of room, printing of folders and posters)||2014|
|Vlaams Hepatitis Contactpunt vzw||Support of different projects: development and maintenance website||2014|