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Patient Organisation

Patient Organisations

At Janssen, patients are at the heart of everything we do.

Working with patient organisations helps us better understand the needs of people living with the diseases and conditions we are committed to preventing, intercepting, treating and curing.

We collaborate with them, supporting their activities to prevent, understand and manage diseases, as well as support patients and caregivers advocate for better treatment and services.

We listen to them, so we can deliver medicines that meet patients’ needs.

We partner with them, building relationships based on mutual respect, open dialogue, integrity and independence.

Janssen wholeheartedly supports a transparent approach to our partnerships with patient organisations as well as with all stakeholders.

We believe open communication about these interactions is good for everyone because it directly addresses public requests for transparency and demonstrates that ultimately these interactions have one goal: advancing medicine and ensuring the best patient care.

Date of ContractPatient OrganisationOrganisation AddressActivity SupportedAmount (Euros)Fees for Services (Euros)
01 November 2020Pulmonary Hypertension Society IrelandThe National Pulmonary Hypertension Unit, 
56 Eccles Street, 
Dublin 7PHA Ireland, approached Janssen to provide them with core funding to the value of €10,000 to help them to continue to provide core services to their service users & update resources.10,000
01 October 2020Pulmonary Hypertension Society IrelandThe National Pulmonary Hypertension Unit, 
56 Eccles Street, 
Dublin 7Pulmonary Hypertension Association Ireland approached Janssen (Actelion) to fund their AGM for patients and family members to the value of €4,5004,500
01 September 2020IPPOSI77 Camden Street Lower, Saint Kevin's,
 Dublin 2, D02 XE80Janssen Sciences Ireland received a request to support the Irish Platform for Patients' Organisations, Science and Industry's (IPPOSI) annual conference.3,000
01 September 2020 Irish Cancer SocietyIrish Cancer Society, 43/45 Northumberland Road, Dublin, D04 VX65, Ireland
 www.cancer.ieJanssen supported the Irish Cancer Society to hold their annual National Conference for Cancer Survivorship, which took place virtually due to COVID 19 in September 2020. 12,500
01 July 2020Irish Society of Colitis & Crohn'sISCC
 Carmichael Centre for Voluntary Groups
North Brunswick Street
Dublin
D07 RHA8
 www.iscc.ie Janssen provided the ISCC with financial support to create dedicated digital assets to house the Gutcast podcasts and for a social media campaign to promote the series.6,500
01 May 2020Irish Society of Colitis & Crohn'sISCC
 Carmichael Centre for Voluntary Groups
North Brunswick Street
Dublin
D07 RHA8
 www.iscc.ie The ISCC requested support from Janssen to deliver their online Self-Management Programme to people living with IBD during the COVID19 pandemic.7,600
01 March 2020Irish Cancer SocietyIrish Cancer Society, 43/45 Northumberland Road, Dublin, D04 VX65, Ireland
 www.cancer.ieThe Irish Cancer Society received support from Janssen Sciences Ireland for the roll out of a Cancer Survivorship Workshop pilot. This funding was reallocated from support Janssen provided to the ICS in 2018 for a project that did not proceed. 33,633
01 December 2019Pulmonary Hypertension Society IrelandThe National Pulmonary Hypertension Unit, 56 Eccles Street, Dublin 7PHA Ireland, have approached Janssen (Actelion) to provide them with core funding to the value of €10,000 to help them to continue to provide core services to their patients & update resources10,000
01 December 2019Irish Society of Colitis & Crohn'sISCC Carmichael Centre for Voluntary Groups North Brunswick Street Dublin D07 RHA8 www.iscc.ie Janssen and the ISCC co created a podcast series for people living with IBD. Janssen paid ISCC for their time in contributing to the podcast including the host and two guests. 4,360
01 November 2019Irish Skin FoundationCharles Institute for Dermatology University College Dublin Dublin D04 V1W8The Irish Skin Foundation approached Janssen to fund their patient education event 'Skin Side Out' to the value of €5000.5,000
01 October 2019Pulmonary Hypertension Society IrelandThe National Pulmonary Hypertension Unit, 56 Eccles Street, Dublin 7Pulmonary Hypertension Association Ireland approached Janssen (Actelion) to fund their AGM for patients and family members to the value of €3000.3,000
01 October 2019IPPOSI77 Camden Street Lower, Saint Kevin's, Dublin 2, D02 XE80IPPOSI have approached Janssen to fund their annual AGM on October 7th 2019 to the value of €2500. This year the topic of the AGM is on ‘Electronic Health Records in Ireland – getting it right from the start’.2,500
01 September 2019Irish Cancer SocietyIrish Cancer Society, 43/45 Northumberland Road, Dublin, D04 VX65, Ireland www.cancer.ieThe Irish Cancer Society have approached Janssen to fund their annual survivorship conference 2019 called 'Living well With and Beyond Cancer' to the value of €25000. This conference provides support groups and speakers on various survivorship topics to those living with or who have survived cancer.25,000
01 September 2019Myeloma Irelandc/o Haematology Department, Tullamore Regional HospitalMultiple Myeloma Ireland approached Janssen to provide core funding to support their organization's activities to the value of €50005,000
01 May 2019Arthritis Ireland1 Clanwilliam Square, Grand Canal Dock, DublinJanssen Ireland supported Arthritis Ireland to create an updated "Living with Psoriatic Arthritis" information booklet and an Arthritis Ireland Information leaflet.6,000
01 July 2019Aware9 Upper Leeson Street Dublin 4Aware, campaign partners, approached Janssen to obtain ownership of aspects of the co-created 'Grounded' 2019 Bloom Garden. The garden costs were included in overall iConnect project EV00165623. The value of items donated will total €9500.9,500
01 June 2019IPPOSI77 Camden Street Lower, Saint Kevin's, Dublin 2, D02 XE80IPPOSI approached Janssen with a request for support to the value of €2500 for the continuation of the IPPOSI ‘Research & Advocacy’ (R&A) function, which has been in existence in IPPOSI since 2017.2,500
01 June 2019CLL Irelandc/o 19 Deanswift Road Glasnevin Dublin 11 D11 Y738 www.clli.ieCLL Ireland has requested support from Janssen Ireland to enable delivery of the second National Public Information Day for CLL Patients and Carers in Ireland. 5,000
01 May 2019See Change c/o SHINEBlock B, Maynooth Business Campus, Maynooth, Co Kildare, W23W5X7255
01 May 2019Aware9 Upper Leeson Street Dublin 4255
01 May 2019Aware9 Upper Leeson Street Dublin 4Aware have approached Janssen to fund part of their social media campaign on their social channels to the value of €500. Sponsored posts will be on the Bloom In The Park collaboration and the call to action of the project to reduce the stigma of mental illness in Ireland and to increase mental health literacy. Aware will declare that Janssen funded but did not influence what they post - this is entirely at the discretion of the PAG500
01 April 2019See Change c/o SHINEBlock B, Maynooth Business Campus, Maynooth, Co Kildare, W23W5X7Shine approached Janssen to provide funding for seeds to give to members of the public to raise awareness of the campaign and as a medium to commence a conversation about mental health.1,585
01 February 2019See Change c/o SHINEBlock B, Maynooth Business Campus, Maynooth, Co Kildare, W23W5X7Shine participated in two workshops as part of the Bloom collaboration with Janssen. Their input shaped the garden, to emphasise the link between gardening and mental illness and to reduce the stigma of mental illness and increase mental illness literacy in Ireland1,486
01 February 2019Aware9 Upper Leeson Street Dublin 4Aware participated in two workshops as part of the Bloom collaboration with Janssen. Their input shaped the garden, to emphasise the link between gardening and mental illness and to reduce the stigma of mental illness and increase mental illness literacy in Ireland1,486
01 November 2018CLL Irelandc/o 19 Deanswift Road Glasnevin Dublin 11 D11 Y738 www.clli.ieJanssen funded travel for two CLL Ireland delegate to attend the Janssen European Oncology Advocacy Summit in Brussels in November 2018600
01 October 2018Irish Society of Colitis & Crohn'sISCC Carmichael Centre for Voluntary Groups North Brunswick Street Dublin D07 RHA8 www.iscc.ie Janssen provided funding to assist the ISCC in covering costs associated with organising and delivering an AGM and paitent information day in October 20183,761
01 September 2018Irish Cancer SocietyIrish Cancer Society, 43/45 Northumberland Road, Dublin, D04 VX65, Ireland www.cancer.ieJanssen Ireland supported the Irish Cancer Society to hold their annual National Conference for Cancer Survivorship, which took place in Cork and Galway in September 2018. 15,000
01 March 2018Irish Cancer SocietyIrish Cancer Society, 43/45 Northumberland Road, Dublin, D04 VX65, Ireland www.cancer.ieJanssen-Ireland provided support to the Irish Cancer Society for a 12 month research fellowship in Prostate Cancer to be conducted at the Dana Faber Institute33,364
01 March 2018Arthritis Ireland1 Clanwilliam Square, Grand Canal Dock, DublinJanssen Ireland supported Arthritis Ireland to create an updated "Living with Psoriatic Arthritis" information booklet and an Arthritis Ireland Information leaflet.8,000
01 March 2018CLL Irelandc/o 19 Deanswift Road Glasnevin Dublin 11 D11 Y738 www.clli.ieJanssen supported CLL Ireland in hosting a patient information day for CLL patients and their families in Ireland. The objective of the information day was to provide information and education, a networking opportunity, discuss potential advocacy opportunities and create public awareness.5,000
01 January 2018Irish Society of Colitis & Crohn'sISCC Carmichael Centre for Voluntary Groups North Brunswick Street Dublin D07 RHA8 www.iscc.ie Janssen provided funding to the ISCC to partially cover costs associated with developing the ISCC support line services and Living Well with IBD self-management programme. 20,000
01 September 2017Irish Platform for Patient Organisations, Science and IndustryIPPOSI Camden Business Centre, 12 Camden Row, Dublin 8Janssen provided funding for the new IPPOSI led Patient Education Programme. This is a new bespoke national patient education programme designed specifically for Irish patients, carers and patient advocates to ensure that they are equipped with the capacities and capabilities to become more informed and consequently more involved in the process. 5,000
01 September 2017Irish Society of Colitis & Crohn'sISCC Carmichael Centre for Voluntary Groups North Brunswick Street Dublin D07 RHA8 www.iscc.ie Janssen provided funding to assist the ISCC in covering costs associated with organising and delivering an AGM in September 2017 and one regional meeting which took place in Cork November 2017. 3,294
18 November 2017CroíCroí House, Moyola Lane, Newcastle, Galway, Co. Galway, IrelandJanssen supported Croi's National Institute for Preventive Cardiology’s National Prevention Conference 2017 which took place on Saturday 18th November 2017 at the Croí Heart and Stroke Centre in Galway. 5,000
01 July 2017Irish Cancer SocietyIrish Cancer Society, 43/45 Northumberland Road, Dublin, D04 VX65, Ireland www.cancer.ieJanssen supported the Irish Cancer Society to aid in their annual National Conference for Cancer Survivorship, September 2017. 15,000
01 March 2017Diabetes IrelandDiabetes Ireland, 19 Northwood House, Northwood Business Campus, Santry, Dublin 9, D09 DH30, IRELANDJanssen, in co-sponsorship with LifesScan, supported Diabetes Ireland to continue with their core activities. Funding for 2016 provided the resources that allowed Diabetes Ireland to offer their 'Ireland Gold Sponsorship Activities in 2017.5,000
01 April 2017Diabetes IrelandDiabetes Ireland, 19 Northwood House, Northwood Business Campus, Santry, Dublin 9, D09 DH30, IRELANDJanssen supported Diabetes Ireland with the editing and reprint of the "Living Well with Type 2 Diabetes” patient information booklet. This booklet provides type 2 diabetes patients access to up-to-date and accurate information on their condition. The support comes in the form of €3,000 financial support and provision of storage facilities for the booklets to the value of €3,000. 3,000
01 April 2017Irish Cancer Society & CLL IrelandIrish Cancer Society, 43/45 Northumberland Road, Dublin, D04 VX65, IrelandJanssen supported the Irish Cancer Society in hosting the first public information day for CLL for patients and their families in Ireland. The objective of the information day was to provide information and education, a networking opportunity, discuss potential advocacy opportunities and create public awareness.3,650
01 November 2016Arthritis Ireland1 Clanwilliam Square, Grand Canal Dock, DublinJanssen supported Arthritis Ireland’s request to fund the costs of The Living with Psoriatic Arthritis information booklet for patients.5,000
01 November 2016Irish Cancer Society Irish Cancer Society, 43/45 Northumberland Road, Dublin, D04 VX65, IrelandJanssen supported the Irish Cancer Society to aid in their annual National Conference for Cancer Survivorship, October 2016. 15,000
01 June 2016HIV IrelandHIV Ireland, 70 Eccles Street, Dublin 7, IrelandJanssen supported HIV Ireland’s financial support request to contribute to the costs of market research on HIV in Ireland. With newly diagnosed HIV figures increasing within Ireland, HIV Ireland believes it is imperative to gain greater knowledge and understanding of how HIV is currently impacting on people’s lives and how HIV is understood and viewed by the general public.5,000
01 May 2016Irish Cancer SocietyIrish Cancer Society, 43/45 Northumberland Road, Dublin, D04 VX65, Ireland www.cancer.ieJanssen supported the Irish Cancer Society to fund the John Fitzpatrick research fellowship, a three year research fellowship in Prostate Cancer to be conducted at the Dana Faber Institute. This was the second installment of €40,000.40,000
01 March 2016Irish Platform for Patients Organisations, Science and IndustryIrish Platform for Patients’ Organisations, Science & Industry, Camden Business Centre, 12 Camden Row, Dublin 8Janssen supported IPPOSI’s financial support request to cover the course fee for an individual Irish EUPATI Trainee to attend the National Centre for Pharmaeconomics (NCPE) Health Technology Assessment (HTA) training course in March 2016. 450
01 April 2016Diabetes IrelandDiabetes Ireland, 19 Northwood House, Northwood Business Campus, Santry, Dublin 9, D09 DH30, IRELANDJanssen, in co-sponsorship with LifesScan, supported Diabetes Ireland to continue with their core activities. Funding for 2016 provided the resources that allowed Diabetes Ireland to offer their 'Ireland Gold Sponsorship Activities in 2016.
01 March 2016Diabetes IrelandDiabetes Ireland, 19 Northwood House, Northwood Business Campus, Santry, Dublin 9, D09 DH30, IRELANDJanssen supported Diabetes Ireland with the development (design & print) of patient information leaflets giving Type 2 diabetes patients access to up-to-date accurate information on their condition and the new Diabetes Cycle of Care in Ireland.8,000
01 March 2016CroíCroí House, Moyola Lane, Newcastle, Galway, Co. Galway, IrelandJanssen supported Croi’s development of Healthy Eating booklets for patients with CV risk. The 20,000 booklets will be distributed via their network to patients nationwide in 20164,000
01 March 2016Irish Society of Colitis & Crohn'sISCC Carmichael Centre for Voluntary Groups North Brunswick Street Dublin D07 RHA8 www.iscc.ie Janssen supported the Irish Society of Colitis and Crohn’s to educate and train their new pool of volunteers to provide education and support to people living with IBD in Ireland.5,000
14 November 2015CroíCroí House, Moyola Lane, Newcastle, Galway, Co. Galway, IrelandCroi National Prevention Meeting 20155,000
27 November 2015Irish Cancer SocietyIrish Cancer Society, 43/45 Northumberland Road, Dublin, D04 VX65, Ireland www.cancer.ieIrish Cancer Society Patient Experience Roadshow.226
01 August 2015Irish Cancer SocietyIrish Cancer Society, 43/45 Northumberland Road, Dublin, D04 VX65, Ireland www.cancer.ieNational Cancer Surviviorship Conference 2015.15,000
27 May 2015Diabetes IrelandDiabetes Ireland, 19 Northwood House, Northwood Business Campus, Santry, Dublin 9, D09 DH30, IRELANDPromotional Speaker.552
01 May 2015Irish Cancer SocietyIrish Cancer Society, 43/45 Northumberland Road, Dublin, D04 VX65, Ireland www.cancer.ieIrish Cancer Society John Fitzpatrick Memorial FC Fellowship40,000
10 April 2015Diabetes IrelandDiabetes Ireland, 19 Northwood House, Northwood Business Campus, Santry, Dublin 9, D09 DH30, IRELANDDiabetes Ireland Gold Sponsorship 201510,000
23 March 2015IPPOSI77 Camden Street Lower, Saint Kevin's, Dublin 2, D02 XE80NCPE Course Attendance Sponsorship.495
02 February 2015IMNDAMarshalsea Court, Unit 3, Ground Floor, 22/23 Merchant's Quay, Dublin 8, D08 C6XPPatient Organisation Support IMNDA2,500
02 February 2015CroíCroí House, Moyola Lane, Newcastle, Galway, Co. Galway, IrelandKnuston Diabetes Counselling course 2015-201815,000
12 January 2015Community Response14 Carman's Court, Carman's Hall, Dublin 8Hep C Patient Materials.2,509
01 January 2015Arthritis Ireland1 Clanwilliam Square, Grand Canal Dock, DublinLiving Well With Arthritis - Self Management Programme.15,000
11 December 2014Community Response14 Carman's Court, Carman's Hall, Dublin 8Hepatitis C Conference Sponsorship5,000
19 November 2014 Irish Haemophilia SocietyHepatitis C Conference Sponsorship9,000
13 November 2014CroíCroí House, Moyola Lane, Newcastle, Galway, Co. Galway, IrelandCROI National Prevention Meeting Sponsorship10,000
16 June 2014CroíCroí House, Moyola Lane, Newcastle, Galway, Co. Galway, IrelandDevelopment of patient materials3,500
19 September 2014Irish Cancer SocietyIrish Cancer Society, 43/45 Northumberland Road, Dublin, D04 VX65, Ireland www.cancer.ieSponsorship of the ICS’ National Cancer Survivorship Conference6,000
19 September 2014Diabetes IrelandDiabetes Ireland, 19 Northwood House, Northwood Business Campus, Santry, Dublin 9, D09 DH30, IRELANDRadio Advertising Sponsorship for Diabetes Awareness Day8,000
07 February 2014Irish Haemophilia SocietyGold Sponsorship of the Irish Haemophilia Society6,000
07 February 2014Diabetes IrelandDiabetes Ireland, 19 Northwood House, Northwood Business Campus, Santry, Dublin 9, D09 DH30, IRELANDGold Sponsorship of Diabetes Ireland10,000
17 January 2014Dublin Aids AllianceHIV Ireland, 70 Eccles Street, Dublin 7, IrelandDevelopment of Patient Materials - Living with HIV brochure3,700
23 July 2013Community Response14 Carman's Court, Carman's Hall, Dublin 8Leaflet Printing775
03 June 2013Arthritis Ireland1 Clanwilliam Square, Grand Canal Dock, DublinDevelopment of leaflet7,500
26 April 2013Men Against CancerPublic Relations Support10,240
01 January 2013Community Response14 Carman's Court, Carman's Hall, Dublin 8Co-sponsorship of a hepatitis C Conference5,000
01 January 2013ShineBlock B, Maynooth Business Campus, Maynooth, Co Kildare, W23W5X7Spontaneous Charitable Contribution2,500
21 June 2012Men Against CancerWebinar Attendance - Patient Advocacy Engagement Programme
21 June 2012Positive ActionWebinar Attendance - Patient Advocacy Engagement Programme
20 September 2011Brain Wave: The Irish Epilepsy AssociationFinancial support to Brainwave to support educational seminar on epilepsy for patients and carers.2,000
25 October 2011Migraine Association of IrelandFinancial support to the Migraine Association of Ireland to support educational national seminar on migraine for patients and carers.2,500
10 May 2011Psoriasis Association of IrelandFinancial support for staff from the P.A.I to attend the EUROPSO meeting in Dusseldorf 28th-30th May 2010500
30 December 2010Brain Wave: The Irish Epilepsy AssociationFinancial support to Brainwave to enable national conference to be broadcast over the web.2,000
25 June 2010Migraine Association of IrelandFinancial support to assist the Migraine Association maintain their website1,500