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Irish blood cancer charities and Janssen Make Blood Cancer Visible

Irish blood cancer charities and Janssen Make Blood Cancer Visible

New campaign supported by Barry McGuigan launches to make people blood cancer aware

2 in 3 people in Ireland mistake blood cancer for skin cancer in new research to mark Blood Cancer Awareness Month1

Dublin, Mon, 4th September 2017: Blood cancer support charities, the Irish Cancer Society, Multiple Myeloma Ireland and Chronic Lymphocytic Leukaemia Ireland, in partnership with Janssen, will today launch a national campaign during Blood Cancer Awareness Month to make blood cancer visible in response to new research that shows almost two thirds (60%) of the Irish public mistake multiple myeloma, a cancer of the plasma cells in the bone marrow, for a form of skin cancer, and only 1 in 8 (12%) associate it with blood cancer.1

Blood cancer is an umbrella term for cancers that affect the blood, bone marrow and lymphatic system2. Most types of blood cancer are rare, life-threatening conditions with small patient populations.2 There are over 140 different types of blood cancers, which can be classified into three main groups, leukaemia, lymphoma and myeloma.2 Together, they comprise nearly 10 per cent of all cancers, with more than 1,900 people across Ireland diagnosed annually.3

The study shows two thirds (67%) of people believe that there are low levels of awareness of blood cancer amongst the population because they have not heard much about it in the media.1 Nearly 1 in 5 (17%) claim it’s rare and doesn’t affect many people, while others incorrectly assume the low level of awareness is due to low mortality rates.1 The Make Blood Cancer Visible campaign, launched today by former Irish professional boxer, Barry McGuigan, aims to highlight the significance and impact of blood cancer, which 85% of respondents were surprised to learn is the fourth most common cause of cancer-related death in Ireland.1

"My father Pat McGuigan was diagnosed with Non-Hodgkin's Lymphoma, a rare type of blood cancer at the age of 52. He underwent surgery in hospital, but sadly died 9 weeks later. My family and I were shocked and devastated" said Barry McGuigan. "In 1987 we were unaware of blood cancer or what it meant in terms of prognosis, treatment and survival. Today, however, there is renewed hope. There is a drive for more public awareness and education, and survival rates and quality of life for many blood cancer patients has significantly improved thanks to early diagnosis and better treatment options. Recognising the subtle signs of blood cancer is key, so take the time to educate yourself and visit your doctor if you notice anything strange".

Worryingly, almost a quarter of the Irish public say they do not know any common symptoms of blood cancer, while (36%) believe that bruising and bleeding easily and a lack of energy are the most common symptoms of blood cancer.1 Blood cancer symptoms vary, and can lead to a delay in patients going to their doctor. Spotting cancer early is key to successful treatment. The common symptoms of blood cancer include: unexplained weight loss, fatigue, feeling weak or breathless, bruising or bleeding easily, enlarged lymph nodes, a swollen stomach or abdominal discomfort, frequent and repeated infections and fever or night sweats.4 If you experience any of these symptoms, speak to your GP for further investigations.

Michael O’Dwyer, Professor of Haematology at NUI Galway and Blood Cancer Network Ireland Director said, “Over the past few decades, science has advanced quickly and opened doors for more precise treatment, and we have seen exciting progress in our understanding and ability to treat blood cancers. Survival rates reflect our remarkable progress in diagnosis and treatment. In Ireland, the five-year net survival for someone diagnosed with multiple myeloma, for example, has nearly doubled in the period from 1994-20135 , and continues to improve. Despite this progress, the need is still great for continued investment in clinical research and innovation in this field, but also for patients to recognize their symptoms earlier.”

Donal Buggy, Head of Services and Advocacy at the Irish Cancer Society says the Make Blood Cancer Visible campaign will engage with the general public, politicians and key decision makers during September to discuss the challenges faced by blood cancer patients nationwide. “Due to the complex, often rare nature of blood cancer, patients may at times feel overlooked and can have difficulty accessing the right support and information. We would urge anyone who is worried about blood cancer or who has received a blood cancer diagnosis to seek support. It is our hope, that by investing in research such as the collaborative Blood Cancer Network Ireland we will increase our understanding of this often invisible cancer. The Irish Cancer Society provides a specialist Cancer Nurseline on 1800 200 700 and our website cancer.ie outlines our expert cancer information and support services that are available, including our Daffodil Centres in 13 major hospitals nationwide.”

Dr Leisha Daly, Country Director, Janssen Ireland, says. “This month, through the Make Blood Cancer Visible campaign, we will work in close collaboration with our healthcare partners to ensure that the low incidence and awareness rates of blood cancer in Ireland do not determine the level of response we have to the disease in terms of ready access to services, supports and treatments for these patients and their families. Helping them, and those who support them, to overcome the challenges they face with hope in their hearts is both our mission and our privilege.”

The Make Blood Cancer Visible campaign will host a free patient information event for people living with blood cancer on Wednesday, 27th September at 6.30pm in the Davenport Hotel on Merrion Street Lower, Dublin 2. Guest speakers will include: Eric Lowe, former CEO of Myeloma UK, a psycho-oncologist, and Rachel Fox, Haematology Nurse Specialist, Beaumont Hospital. The event is open to all people living with blood cancer as well as their family, friends and carers. For all campaign information visit cancer.ie/bloodcancer.

September is Blood Cancer Awareness Month. Help us to Make Blood Cancer Visible by sharing our patient storybook , featuring personal stories of those impacted by the disease (Irish patient story on p40), and campaign video, which will go live on all campaign partner social media sites from mid-September. Visit cancer.ie/bloodcancer or follow @JanssenIE@IrishCancerSoc, @MyelomaIreland and @CLL Ireland to join our movement.

For more information, please contact:

Sarah Horgan, Wilson Hartnell. Tel: 01 669 0030 or 087 665 8942 or [email protected]

Orla Gough, Wilson Hartnell. Tel: 01 669 0030 or 085 736 0119 or [email protected]

Ends

Notes to editor:

About Make Blood Cancer Visible

To support patients and their families, in 2015 Janssen launched Make Blood Cancer Visible, a campaign asking people impacted by blood cancer (patients, caregivers, family members, healthcare professionals) to help make themselves and their blood cancer more visible by sharing images or personal stories on the campaign. The Make Blood Cancer Visible Patient Perspectives Book, a collection of personal stories shared by individuals affected by blood cancer, is available to download at cancer.ie/bloodcancer

This year, the campaign goes one step further to build a coalition in the fight against this invisible disease. It will collaborate with charity partners and experts to engage with the general public, politicians and key decision makers in September to discuss the challenges faced by blood cancer patients nationwide and offer a free information event for blood cancer patients and their families.

About blood cancer3

Blood cancer is a term for cancers which affect the cells or the blood or organs where blood cells grow and develop in the bone marrow and lymphatic system. There are three main types of blood cancer, which make up over 1,900 cases of newly diagnosed cases each year in Ireland which include leukaemia, lymphoma and myeloma. To find out more information on blood cancer the public are encouraged to visit cancer.ie/bloodcancer

About the Janssen Pharmaceutical Companies of Johnson & Johnson:

Janssen Pharmaceutical Companies of Johnson & Johnson is dedicated to addressing and solving the most important unmet medical needs of our time including oncology (e.g. multiple myeloma and prostate cancer), immunology (e.g. psoriasis), neuroscience (e.g. schizophrenia, dementia and pain), infectious disease (e.g. HIV/AIDS, hepatitis C and tuberculosis), and cardiovascular and metabolic disease (e.g. diabetes). Driven by our commitment to patients, Janssen develops sustainable, integrated healthcare solutions by working side-by-side with healthcare stakeholders, based on partnerships of trust and transparency. More information about Janssen’s commitment in drug development can be found at www.janssen.com/ireland.

About Janssen Oncology

Janssen is working to change expectations of what a cancer diagnosis means so that one day the words ‘you have cancer’ will be less terrifying for patients to hear and less distressing for physicians to say. We aim to make cancer a manageable, even curable, condition.

We pursue the cancer types and sub-types which we know best and where our understanding of disease pathways and the needs of patients are greatest, and where we can achieve the highest impact. We are also trying to go one step further, stopping cancer before it can get a hold in the body (a process known as cancer interception). With the help of some wonderful partners and ground-breaking collaborations, we are making great progress.

Find out more by visiting: www.janssen.com/emea/health/oncology

References:


1Empathy Research for Blood Cancer Awareness. August 2017.

2Anthony Nolan. What is blood cancer? Available at: http://www.anthonynolan.org/patients-and-families/blood-cancers-and-blood-disorders/what-blood-cancer. Last accessed August 2017.

3National Cancer Registry Ireland http://ncri.ie/data/incidence-statistics. Last accessed August 2017.

4Leukaemia Care http://www.leukaemiacare.org.uk/signs-and-symptoms-of-blood-cancer. Last accessed August 2017.

5National Cancer Registry Ireland http://ncri.ie/data/incidence-statistics. Last accessed August 2017.