Janssen Immunology Supports New Awareness Campaign Encouraging Patients To Join The Irish Society For Colitis And Crohn’s Disease (ISCC)
ISCC establishes new helpline 01 5312983 to support patients and offers a ‘No Waiting’ bathroom pass to all members to aid rapid access to public bathrooms
Dublin, Mon, 29th January 2018 - Janssen Immunology today announced the launch of a national campaign to drive awareness of inflammatory bowel disease (IBD) and encourage patients to join the Irish Society for Colitis and Crohn’s Disease (ISCC). This campaign calls on healthcare professionals caring for people with IBD to refer their patients to the ISCC to become members and avail of supports, including a new helpline, 01 5312983 and a free ‘No Waiting’ bathroom pass that aids people living with IBD to access to public bathrooms. The ISCC are also launching Living Well with IBD, a self-management programme based on the Stanford CDSMP model.
IBD is a term mainly used to describe two conditions: ulcerative colitis and Crohn’s disease. The number of people living with IBD in Ireland has been estimated at 15,0001 but the ISCC believes it is as high as 40,000 people. Over two thirds of people living with these conditions worry about toilet availability.2 Furthermore, 75% of people with IBD have some experience of incontinence during flare ups, which can make them reluctant to leave the house.3
“We are delighted to announce the launch of the ISCC National IBD Support Line. Support line calls are answered by trained and dedicated volunteers who have their own personal experience of living with IBD”, says Bruno Lucas, Chairperson of the ISCC. “We are also delighted to announce that we will be offering the evidence based Stanford Chronic Disease Self-Management Programme as ''Living Well With IBD''. The first programmes will be offered to people who are living with IBD later in 2018. For more information please visit www.iscc.ie”.
“Ulcerative colitis and Crohn’s disease are chronic conditions characterised by ulceration of the digestive tract leading to inflammatory flares and periods of remission. Both conditions cause symptoms like urgent and persistent diarrhoea, vomiting, severe stomach pain and extreme fatigue”, said Professor Colm Ó’Moráin, Dean of the Faculty of Health Sciences Trinity College and ISCC Medical Patron. “Early diagnosis and treatment are of paramount importance to reducing inflammatory flares and managing these conditions. If you think you might be experiencing symptoms of IBD or you are having difficulty managing the condition, visit iscc.ie or contact our helpline on 01 5312983 today.”
Dr Leisha Daly, Country Director, Janssen Ireland, says. “We are delighted to work with the Irish Society for Colitis and Crohn’s Disease on this national awareness campaign. Janssen Immunology is committed to breaking new ground and expanding our support for challenging areas where high unmet medical needs remain. We want to highlight the daily challenges people living with IBD face, and ensure the right treatments, services and supports are in place and easily accessible.”
If you are a healthcare professional caring for someone living with IBD, please refer them to the ISCC to become a member to receive their own ‘No Waiting’ bathroom pass. Visit the ISCC website iscc.ie or contact their helpline 01 5312983 for additional support.
About Janssen Ireland
Janssen Pharmaceutical Companies of Johnson & Johnson, is dedicated to addressing and solving the most important unmet medical needs of our time, including oncology (e.g. multiple myeloma and prostate cancer), immunology (e.g. psoriasis), neuroscience (e.g. schizophrenia, dementia and pain), infectious disease (e.g. HIV/AIDS, hepatitis C and tuberculosis), and cardiovascular and metabolic diseases (e.g. diabetes). Driven by our commitment to patients, Janssen develops sustainable, integrated healthcare solutions by working side-by-side with healthcare stakeholders, based on partnerships of trust and transparency. More information about Janssen’s commitment in oncology can be found on www.janssen.ie or follow us on Twitter @JanssenIE
1ISCC. About Colitis and Crohn’s Disease. www.iscc.ie/about. Last accessed, January 2018
2IBD Action Group. The True Impact if Inflammatory Bowel Disease in Ireland Survey, 2010
3Crohn’s & Colitis UK. Managing Bowel Incontinence in IBD information sheet. Available at http://s3-eu-west-1.amazonaws.com/files.crohnsandcolitis.org.uk/Publicat... Last accessed, January 2018