Living with Pulmonary Arterial Hypertension
Pulmonary Arterial Hypertension (PAH) is a lifelong disease that affects you and many of your activities in everyday life. But it doesn't have to define you. In the fight against PAH your voice matters. Learning more about the disease can help you feel more confident and empowered when speaking about your condition with everyone involved in your care journey.
It all begins when you Breathe In and Speak Out.
Breathe In, Speak Out Toolkit and Support
Breathe In, Speak Out provides access to a range of PAH focused information, resources and support networks to help you manage your disease more effectively.
The Breathe In, Speak Out toolkit can be downloaded below and contains a range of resources to help you build knowledge, confidence and determination to be active in your care. The toolkit includes knowledge cards with facts about PAH, emotion cards to help you express your feelings and quotes from real PAH patients like you.
We also have local websites for different geographical regions that provide additional information and access to a community of PAH patients, to give additional peer-to-peer support and resources. Click below to access your regional website:
PAH Patient Charter
The PAH Patient Charter outlines the standards of holistic care that we believe everyone with PAH should receive. It was developed by an international group of patients, patient advocacy group representatives and healthcare professionals.
We hope the information in the Charter will help you take control of your care journey, and work with your care team to:
- Communicate effectively with each other
- Make decisions together
- Agree on a care plan that is appropriate for you